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Solve is partnering with @ARCHANGELS.me for #FamilyCaregiversMonth. Take 2 minutes to check in on yourself & get your Caregiver Intensity Score to access free tools for support. Click here: archangelscii.me/SOLVE or scan the QR code.
Our workshop "Chronic Illness Caregiving for Youth, Teen, and Adult Children" with Denise Lopez-Majano is this Saturday - November 22nd at 3 pm ET! Get your ticket now: ow.ly/3IcV50XlbZh #caregiver #FamilyCaregiver #PwME #MECFS #LongCovid
Leading #LongCOVID and related disease researchers presented updates to their work Friday at the PolyBio Research Foundation’s Fall 2025 Symposium. As always, we live blogged the event. Check out summaries of each talk: bit.ly/4o38Gne
It is National Family Caregivers Month and we partnered with Caregiver Wisdom to share resources for caregivers. Check out their post with lots of helpful ideas for saying thanks: caregiverwisdom.net/post/thoughtfu… #pwME #Caregiver #FamilyCaregiver
Call to action: Congress has extended Telehealth until January 31,2026. This is NOT a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent. Call now using our call script: meaction.net/telehealth #Telehealth
Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test."🧬Learn how a 96% accurate test could transform diagnosis + treatment. 🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET 🔗ow.ly/bCNQ50Xq8Qb #MEAwarenessHour
2 new sites are enrolling for the #LongCovid ADDRESS-LC trial on bezisterim: Mount Sinai (NY) & UCSF (SF)! Bezisterim is an investigational drug that has been studied in neurological disorders, including Alzheimer’s. Find a site near you: addresslongcovid.com/sites/
Join us Tues, Nov 18 | 1 PM MST for BHC’s Online Support Group- Acquainted with Grief: Growing through Ambiguous Loss We’ll reflect on what we’ve lost, how we heal, and what helps us move forward. Register now: bit.ly/4npZ4Ud #MECFS #LongCOVID #ChronicIllness #IACCs
Holding everyone grieving in love.
A recent study by the team at the Center for Infection and Immunity at @Columbia describes how a hyperactive innate immune system can drive #MECFS -associated fatigue & #PEM, laying the groundwork for preventive treatments & advancing diagnostic tools. ow.ly/piKz50Xt44g
A groundbreaking paper by @younis_sh1 et al. @stanfordimmuno provides an answer to the long-standing question about how EBV infections are linked to lupus. A short thread to explain the key findings. (1/) science.org/doi/10.1126/sc…
Exciting to see that the ADDRESS-LC Trial continues to expand! Watch our webinar on the trial here: youtu.be/-mMgzoZikys
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YouTube
ADDRESS-LC Trial: Studying Impact of Bezisterim on Brain Fog &...
A new site is enrolling for the #LongCovid ADDRESS-LC trial on bezisterim: Mount Sinai (NY)! Bezisterim is an investigational drug that has been studied in neurological disorders, including Alzheimer’s. Find a site near you: addresslongcovid.com/sites/
Sign up for our webinar “Protecting the Ones You Love: Legal & Insurance Tools for ME/CFS Caregivers.” Andrew Kantor, Esq. of @KantorKantor will share practical legal and insurance tools. Wed. Feb. 11, 2026 @ 12 pm PT / 3 pm ET. ow.ly/JpSv50XmU3v
ADDRESS-LC trial in Long COVID 💥 More People Can Join The Study! You may now qualify if any of these apply to you: ✅ You take low dose naltrexone (4.5 mg or less per day) ✅ You have ADHD but aren’t taking stimulant medications ✅ You’re under 70 yrs old ow.ly/hgcY50Xq9LC
Our 10/31 AMA with @PutrinoLab addressed #LongCOVID, #MECFS, #chronicLyme, #vaccine recommendations, #chronicmigraine, #moldillness, and more -- find it in full here: youtube.com/watch?v=mngprG…
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YouTube
Ask Me Anything with Dr. Putrino: 10/31/25
A new study finds that children face twice the risk of developing Long COVID after a second SARS-CoV2 infection. Data from over 465,000 patients under 21 years old showed that reinfection during the Omicron era was linked to a higher rate of Long COVID diagnoses, regardless of…
Role Reversal: Could a WEAKENED Fight/Flight Response Be Causing ME/CFS and Long COVID? The 2025 IACFS/ME Conference Pt. I #MECFS #FM healthrising.org/blog/2025/11/1…
☕ Join us Wed. Nov 12 at 10 AM MST for “Coffee” with a Clinician: Navigating Clinical Uncertainty Pt 2. Hear patients, caregivers & clinicians share ways to bridge communication in complex care. Free | $5 optional donation. 🔗 bit.ly/3JCHAFq #MECFS #LongCOVID #IACCs
Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test."🧬Learn how a 96% accurate test could transform diagnosis + treatment. 🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET 🔗ow.ly/bCNQ50Xq8Qb #MEAwarenessHour
Women are three times more likely than men to get severe long COVID: Here’s why Folio ualberta.ca/en/folio/2025/…
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