#decodeme search results
Day 2 of #decodeME making the news. This time in Korean and Greece. A few in the Netherlands, Russia, Belgium and one in Arabic. Bit less than yesterday but still more coverage than #pwme are used to seeing.
Earlier this summer, the ME Association awarded @DecodeMEStudy the 2025 Howes-Goudsmit Award for their extensive work and commitment to their genome-wide association study. Donate the Decode ME: actionforme.org.uk/research-campa… #MECFS #pwME #DecodeME
#DecodeME will be presenting at the BACME conference today. As this is a clinician focussed event, & not everyone can attend, we wanted to share our presentation*. decodeme.org.uk/media/ *This is a prerecording of the presentation that will be delivered live at the conference.
research.ed.ac.uk/en/publication… Ich habe den #DecodeME Preprint jetzt mehrfach zum Zwecke der Inspiration gelesen, habe selbige aber nur sparsam verspürt. Was wären denn translationale Aspekte (mit allen gebotenen Vorbehalten), die wir mit mglw. 1/5
This festive season, we’d like to encourage those with a loved one w/ME to gift an act of kindness. Ask what would be most helpful and comforting to them, what may seem small to you could be immensely helpful & meaningful to someone living with ME #DecodeME #RandomActsOfKindness
Wow – die ersten 1.000 € sind schon zusammen! 💙 Danke an alle, die schon gespendet oder geteilt haben – ihr seid großartig. Lasst uns gemeinsam das Ziel knacken und MECFS ein Stück weiter entschlüsseln #WirSindSarah #LearnAboutME #DecodeMe Die Spenden gehen komplett an die…
This trial has funding to analyse 25000 samples but is well short. To register/find more info, go to: decodeme.org.uk/portal Please tell others. This article explains why the study is important: healthrising.org/blog/2023/10/0… #MyalgicEncephalomyelitis #DecodeME #MEcfs #CFS #PwME
#DecodeME is now closed for the holidays! Thank you for everything you have helped us achieve together this year & for your continued support. We are now deep into the exciting stage of analysing the data & anticipate the DNA analysis to be complete by the middle of 2025 #MECFS
This #WorldMEday, #DecodeME hopes that by building recognition, fostering global cooperation and sharing research findings, we can help accelerate research towards possible diagnostic tests and treatments for #MECFS. #GlobalVoiceForME
Thanks to the thousands of #pwSevereME who took part in #DecodeME, we know that being female, older & having #ME for 10+ years = more likely to have #SevereME. During genetic analyses, we hope to make further discoveries & direct future research toward treatments/cure for #pwME
This #WorldMEday we want to take a pause & recognise the challenges, stigma & neglect that many #pwME face. We hope that #DecodeME can pave the way forward in accelerating research into M.E./CFS & will help to set a standard in research to include voices of pw lived experiences.
Only 2 days to wait for #pwME Good to have received warning. #DecodeME will be posting their initial results 🙏🤞💙
Top associated genes in #pwME according to #DecodeME in their role Chromosome: 1q25.1 Gene(s): RABGAP1L Proposed Role: Intracellular response to infection Chromosome: 6p22.2 Gene(s): BTN2A2 Proposed Role: T-cell mediated immunity Chromosome: 6q16.1 Gene(s): FBXL4…
The main thing to takeaway from #DecodeME is that every single one of the significant genes found (and the ones below that threshold) directly correlate with the symptoms patients report and the years of biological findings in the immune system and nervous system. Cant fake DNA
Inmunitarios, teniendo XUECs de autoinmunes, varios CSURs, el VHIR, etc. Y que aún estén con SSC y permeabilidad intestinal, viendo los avances del #DecodeME etc.... Ayyy...
What did bro mean by this? Maybe there is some clue? I don't know but Pivot. #Cryptologic #DecodeMe
jgbff vdjie rxpib pvgon apqwu iszqf uhmux llggq cofst skmtu cbfnm kvzft iskdf cjhip kpmsm qjxqa zxjyn s
Ck out this new blog from @mecfsskeptic -- the 2nd installment on the #DecodeME results, this one focused on genes associated with #MECFS: mecfsscience.org/genes-pointing… #MEAwareness #MEAwarenessHour
In the #DecodeME study the genes associated with ME/CFS are found to be involved in neuronal development & communication in the brain. The genes highlighted are not uniquely linked to ME/CFS. But the DNA signal around them is often different. tinyurl.com/heans3zb
Earlier this summer, the ME Association awarded @DecodeMEStudy the 2025 Howes-Goudsmit Award for their extensive work and commitment to their genome-wide association study. Donate the Decode ME: actionforme.org.uk/research-campa… #MECFS #pwME #DecodeME
A series of blogs aims to look in detail at the first analysis of the #DecodeME study results. It begins by looking at SNPs and heritability. tinyurl.com/4bznkvy3
O, jā! Miega un miera režīms ir mega svarīgs! Un tomēr arī tas jāvertē akūtā C19 kontekstā, jo plaušu dēļ, cik zinu, ir jākustas. Par garo kovidu - ir ģenētiskā sakarība #decodeme, bet pētniecība vēl procesā. Skaidri zināms tikai, ka atkārtotas infekcijas vairo risku.
Since this is making rounds again… a thought popped up. Can we see some relation to folate processing genetics in #DecodeME @DecodeMEstudy data? @RobWust is there anything you can tie this to in your studies? Folate and its forms are… a key.
Dear researchers, This is somehow at the very core. Folate-folinic acid… something there. It keeps coming up in research and in peer groups. Please check all your previous studies in relation to this to find right questions and hypotheses. Also,there was a video…will link!
Peter uses AI to make a podcast explaining the #DecodeME study results in more simple terms. "Hearing “the presenters” discuss my lived experience without judgement was unexpectedly powerful." [12 mins] tinyurl.com/4kwxvvx4
The #DecodeME website has a new home at the university of Edinburgh with all the information that patients and researchers will need about the project. tinyurl.com/y3yuvxzv
DeCodeME has released the video and transcript from their webinar held a fortnight ago - tinyurl.com/5xk5anv3 plus a new deCodeME website has been launched where updates and contact information can be found long-term. tinyurl.com/287vnz5k #MECFS #decodeME
People who work in public health/economics HATE #pwme as we are merely seen as a problem, rather than the disease being the issue to solve. They can't even be bothered to read research before drawing conclusions & ignore existing biomed research which aligns with #decodeME #MECFS
There is also a genetic influence on self-reported tiredness. Knowing that two of the authors of this paper are the Deary brothers, a lesser man would have attempted a pun along the lines of Deary Deary ME. nature.com/articles/mp201…
nature.com
Genetic contributions to self-reported tiredness
Molecular Psychiatry - Genetic contributions to self-reported tiredness
In @guardian Science Weekly podcast Nicky Proctor talks about how ME affects her life and about taking part in Decode ME. ow.ly/UA4W50WJpsy #ScienceWeekly #DecodeME #SciencePodcast #MedicalResearch #MECFS #MyalgicEncephalomyelitis
In @guardian Science Weekly podcast Nicky Proctor talks about how ME affects her life and about taking part in Decode ME. ow.ly/UA4W50WJpsy #ScienceWeekly #DecodeME #SciencePodcast #MedicalResearch #MECFS #MyalgicEncephalomyelitis
Fantastic and accessible coverage (20 mins) of the excellent #DecodeME study. @NickyProctor does us proud, speaking as a patient. #pwME #MECFS theguardian.com/science/audio/…
ME Research UK-funded researcher Dr Jarred Younger has recorded a 15 minute explanation of deCodeME's recently published pre-print results. This covers background, method, results, and importance - tinyurl.com/5n6buzpj #MECFS #decodeME
youtube.com
YouTube
068 - New results from a (very large) ME/CFS genetics study!
Me being social, asking you to read my body language. I'm dropping hints like breadcrumbs in a social game of charades. Ready to guess the message? 🕵️♂️💬 #DecodeMe #BodyLanguage #scarlettscabaret
And back here in the UK, here's the lead for #DecodeME denying harassment of scientists. 👏👏👏👏 Sure it was a crowd-pleaser at the time, but it's horseshit. 🐴💩 Absolute horseshit.
Day 2 of #decodeME making the news. This time in Korean and Greece. A few in the Netherlands, Russia, Belgium and one in Arabic. Bit less than yesterday but still more coverage than #pwme are used to seeing.
We have now entered the 12 Hour Countdown to the #DecodeME Largest #MECFS Study #pwME #MECFSResearch
Well this is a bit exciting; #DecodeME are DNA sampling 25,000 people in the UK with ME/CFS to see if a genetic link can be found, and from that better treatment/preventative options🤞 It'd be rude not to try and do my bit, even if all forms of spitting are loathsome!😂
Wow – die ersten 1.000 € sind schon zusammen! 💙 Danke an alle, die schon gespendet oder geteilt haben – ihr seid großartig. Lasst uns gemeinsam das Ziel knacken und MECFS ein Stück weiter entschlüsseln #WirSindSarah #LearnAboutME #DecodeMe Die Spenden gehen komplett an die…
This trial has funding to analyse 25000 samples but is well short. To register/find more info, go to: decodeme.org.uk/portal Please tell others. This article explains why the study is important: healthrising.org/blog/2023/10/0… #MyalgicEncephalomyelitis #DecodeME #MEcfs #CFS #PwME
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