#disabilitysos search results
ICYMI: Solve CEO Emily Taylor spoke at the #MIllionsMissing #DisabilitySOS event hosted by @meactnet in DC today. She reflected on her journey as a caregiver & announced our #MECFS Catalyst Award funding for a study by Dr. Akiko Iwasaki. ow.ly/Jzx550VRqz3 #WorldMEDay
youtube.com
YouTube
Solve M.E. President Emily Taylor Speaks 2025 Millions Missing
For the most part I keep it together. I try not to dwell on how small my world is, how much I’ve lost. But the other week it all came rushing over me. #MECFS #DisabilitySOS
Kim Moy shares why she is protesting from home today for #MillionsMissing. Please join us online and TAKE ACTION to help the #MIllionsMissing. Sign the letter to the NIH, call your congressperson, share our stories, & donate to MEAction. meactions.org/millionsmissin… #DisabilitySOS
Get ready for #MillionsMissing 2025 and to send out your SOS for ME research funding. More information coming soon. #MillionsMissing #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #DisabilityJustice #disability #spoonie #chronicIllness
ME has one of the LOWEST (the lowest of those measured) health related quality of life. The situation for #pwME is dire #DisabilitySOS Day 12 #MEAwarenessDay #PedroPascalPapers
And if you have #MECFS What’s your favorite spark in the dark right now? Researcher? New article? News story that actual gets it right? We need those sparks more than ever right now. #DisabilitySOS #MillionsMissing #MEAwarenessDay
We’re sending out an SOS 🛟 Please help us. Sign the letter to the NIH linked below Contact Congress Boost #MillionsMissing #DisabilitySOS #ThereForME #MEAwarenessDay and #WorldMEDay Share Mutual Aid meactions.org/millionsmissin…
meaction.net
#MILLIONSMISSING | #MEAction
For #MillionsMissing 2025, #MEAction is sending out an SOS.
This is why we need your help. There are millions with #MECFS enduring this same torture I describe. The legions of the #MillionsMissing only continue to grow thanks to Covid. But our Science and our Support Systems are foundering. #DisabilitySOS
Jo Elms has asked us to share this beautiful SOS and send it to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk #MillionsMissing #DisabilitySOS
URGENT Stalled since Monday Chronically ill people cannot survive capitalism without community support. Step up, support her!!! #DisabilityPrideMonth #DisabilitySOS
@LadyLonghaul has many still unmet medical, utility & food needs. $321 are needed ASAP urgently. Total goal is $1881. #LongCovid long haulers who are dedicated heart & soul to community uplifting like she is deserve to be uplifted by the community. Please help her. Share this.
Visit MEAction UK's page to see more SOS messages and there’s still time to share your own SOS on social media today if you’re able. #MillionsMissing #DisabilitySOS
Who knew, when we voted Labour into government, we would be getting a slightly diluted version of the Tories - a government that puts money before people. Won't be making that mistake again! #DisabilityRebellion #DisabilityBenefits #DisabilitySOS
SOS 🛟 Abbiamo bisogno di più risorse, più supporto, più ricerca! Questo è vero per ogni Paese del mondo. #DisabilitySOS #MillionsMissing #WorldMEDay #mecfs #cfsme #Meawareness #Encefalomielitemialgica
Lorraine Nuttall has sent her SOS by video. ❤️ We ask @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk to read your messages and understand why funding research into ME is urgent. #DisabilitySOS #MillionsMissing #MyalgicEncephalomyelitus #MyalgicE
It’s time! #MillionsMissing is this Monday! Are you ready? We can help! We have a Show Up From Home Toolkit that we have been adding more resources to and it is waiting to help you prepare! ow.ly/zHJX50VQmBX #DisabilitySOS #PwME #MECFS #LongCovid
“It’s shocking how bad you can feel and still be alive” 💔 isn’t that the truth. Thanks so much for using your energy to do this @rhirhiarhii xx #MEAwarenessDay #StillTheSaME #DisabilitySOS @AshleyDalton_MP @wesstreeting
Clip from Re:News segment on #MECFS: “Waking up it’s like you’ve been hit by a truck. Everything’s shaking, vibrating internally. My brain feels inflamed, it’s like you’ve got a concussion.” @rhirhiarhii
TW: In Memoriam M.E. Deaths Merryn Crofts me-pedia.org/wiki/Merryn_Cr… @The_MRC @wesstreeting, @AshleyDalton_MP @CMO_England @DHSCgovuk #MEAwarenessDay #MEKills @MEActNetUK #DisabilitySOS #MillionsMissing
me-pedia.org
Merryn Crofts
Merryn Crofts
TRIGGER WARNING Tell @The_MRC, @wesstreeting, @AshleyDalton_MP, @DHSCgovuk, @NIHRresearch that money invested in ME research will prevent further tragedies like the death of Merryn Crofts.👇 meaction.net/2025/04/11/sos… #MillionsMissing #DisabilitySOS #MyalgicEncephalomyelitis 🆘
URGENT Stalled since Monday Chronically ill people cannot survive capitalism without community support. Step up, support her!!! #DisabilityPrideMonth #DisabilitySOS
@LadyLonghaul has many still unmet medical, utility & food needs. $321 are needed ASAP urgently. Total goal is $1881. #LongCovid long haulers who are dedicated heart & soul to community uplifting like she is deserve to be uplifted by the community. Please help her. Share this.
How are NC residents suffering with #LongCOVID supposed to access clinical care if their only LC clinic is closed? I'm asking you, @SenTedBuddNC. @MEActionNC #disabilitySOS #MEforward meaction.net/2025/06/23/pre…
How are NC residents suffering with #LongCOVID supposed to access clinical care if their only LC clinic is closed? I'm asking you, @SenThomTillis. @MEActionNC #disabilitySOS #MEforward meaction.net/2025/06/23/pre…
Federal funding for #LongCOVID has never been more essential! No one knows that better than people with #MECFS. We have sounded the alarm for decades. @meactionga stands with our LC neighbors in NC. @MEActionNC #disabilitySOS #MEforward
UNC closed its Long COVID clinic last week after its federal funding ran out. It was the sole #LongCovid clinic in North Carolina. The clinic has been a lifeline to thousands of people living with Long COVID, ME/CFS and POTS since it opened in 2021.
WOW! So many similarities between @elizansell 's experience with #MECFS and my own. I also had a doctor ask me if I had a boyfriend? As if that was a cure. It's egregious. I thought I was the only one. #pwME #disabilitySOS healthywomen.org/real-women-rea…
healthywomen.org
I'm Tired of ME/CFS Being Misunderstood
I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
ICYMI: Solve CEO Emily Taylor spoke at the #MIllionsMissing #DisabilitySOS event hosted by @meactnet in DC today. She reflected on her journey as a caregiver & announced our #MECFS Catalyst Award funding for a study by Dr. Akiko Iwasaki. ow.ly/Jzx550VRqz3 #MEAwarenessHour
youtube.com
YouTube
Solve M.E. President Emily Taylor Speaks 2025 Millions Missing
We’re sending out a #DisabilitySOS to @alanalda! Bad science & stigmatization have robbed pts w ME/CFS of 4 decades of progress. We're on cusp of change, but we need help! Would love to see you discuss ME on @alda podcast! 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME
We fight for every person with ME. Wherever they live, whether they are mild or very severe, every single person deserves care, support and research into their disease. And every single person has our World ME Alliance backing them. #DisabilitySOS #DisabilityJustice #MECFS
After a hectic #MillionsMissing it's time to relax, what better way than taking part in the Tea Party for ME tomorrow ? 🫖🧁 We would be delighted if you selected #MEAction UK for a donation. ow.ly/3Tk250VOGPi #DisabilitySOS #MECFS #LongCovid #MyalgicEncephalomyelitis
@MEActNetUK I can't see the light at the end of the tunnel #DisabilitySOS #MyalgicEncephalomyelitis #GlobalVoiceForME #MEawarenessmonth #WorldMEDay #SevereME #verysevereme #longcovid #MillionsMissing
Efrosyne Crouch sent this SOS to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk Please like and share these wonderful SOS messages & tag funders & MPs. ❤️ #MillionsMissing #DisabilitySOS
All of us at #MEAction UK want to send a big thank you ❤️ to everyone who sent an SOS @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk all who shared and liked a post and everyone supporting #pwME. #DisabilitySOS #MillionsMissing #MyalgicEncephalomyelitus
@MEActNetUK GONE MISSING #DisabilitySOS #MyalgicEncephalomyelitis #GlobalVoiceForME #MEawarenessmonth #WorldMEDay #SevereME #verysevereme #longcovid #MillionsMissing
Jo Elms has asked us to share this beautiful SOS and send it to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk #MillionsMissing #DisabilitySOS
Have you checked our #MIllionsMissing SOS Show Up From Home Toolkit yet? It's time to get ready for May 12th! docs.google.com/document/d/1_f… One item included in the toolkit was the option to send in your photo. More info: ow.ly/80XC50VCKU4 #DisabilitySOS #PwME #MECFS
@MEActNetUK I MISS ME #DisabilitySOS #MyalgicEncephalomyelitis #GlobalVoiceForME #MEawarenessmonth #WorldMEDay #SevereME #verysevereme #LongCovid
Financiamiento crítico para la investigación, cuidado y apoyo de #ME (logrado a través del enorme esfuerzo de personas enfermas, y aún lejos de ser proporcional a la carga de la enfermedad) está actualmente en peligro en EEUU. Por eso me uno a @MEActNet #DisabilitySOS. (5/6)
An SOS from Laura Clay Newton to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk #MillionsMissing #DisabilitySOS
Today is #MillionsMissing! #MEAction is organizing today’s protest to call on officials to protect the basic infrastructures that support our communities: Medicaid, home care support, research funding and open science. We are sending out a #DisabilitySOS! meactions.org/millionsmissin…
This poem is entitled I'TS MY LIFE. #DisabilitySOS #MyalgicEncephalomyelitis #GlobalVoiceForME #MEawarenessmonth #SevereME #verysevereme #longcovid #MillionsMissing
Critical funding for #ME research, care, and support (achieved through immense labor by very ill people, and still far from commensurate to disease burden) is currently in danger in the U.S., so I'm joining @MEActNet in putting out a #DisabilitySOS. (5/x)
Get ready for #MillionsMissing 2025 and to send out your SOS for ME research funding. More information coming soon. #MillionsMissing #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #DisabilityJustice #disability #spoonie #chronicIllness
I want a new body and a new brain #pwME experience a complete body breakdown and would love to change into something new. #DisabilitySOS #MyalgicEncephalomyelitis #GlobalVoiceForME #MEawarenessmonth #SevereME #verysevereme #longcovid #MillionsMissing
You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - 2 weeks from today! Join us in DC & online! We will be sounding an SOS at the nation’s capitol and across social media! All you need to know can be found here: meactions.org/millionsmissin… #PwME #MECFS
An SOS from F A Brown to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk #MillionsMissing #DisabilitySOS
The ME Support Group, Chorley. has made this heartfelt SOS and sent it to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk Please like and share these wonderful SOS messages. ❤️ #MillionsMissing #DisabilitySOS
This one is titled PARRALEL UNIVERSE. #DisabilitySOS #MyalgicEncephalomyelitis #GlobalVoiceForME #MEawarenessmonth #SevereME #verysevereme #longcovid #MillionsMissing
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