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#disabilitysos risultati di ricerca

ThereForME_UK's profile picture.
#ThereForME
 @ThereForME_UK
24 apr 2025

1/ #MEActionUK is sending out an SOS: people with ME are calling on UK research funders to invest in biomedical research. Details on how to support the campaign in the next tweet 👇🏼 #DisabilitySOS #MillionsMissing #MyalgicEncephelitis

MEActNetUK's profile picture. #MEAction UK focuses on campaigning and advocacy in the UK a part of the charity MEAction UK.
#MEAction Network UK
 @MEActNetUK
19 apr 2025

This #MillionsMissing we want to flood the funding orgs with SOS messages demanding money for ME research. Send yours by post to the government, DHSC, MRC & NIHR -info👇 ow.ly/ewnZ50VCe0F #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness

MEActNetUK's tweet image. This #MillionsMissing we want to flood the funding orgs with SOS messages demanding money for ME research. Send yours by post to the government, DHSC, MRC & NIHR -info👇 ow.ly/ewnZ50VCe0F #DisabilitySOS #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis #ChronicIllness
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RipperMD41's profile picture. Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @RipperMD41@disabled.social T2: same as here @rippermd41.bsky.social
@TheRealMcCoy aka Meghan
 @RipperMD41
13 mag

This is why we need your help. There are millions with #MECFS enduring this same torture I describe. The legions of the #MillionsMissing only continue to grow thanks to Covid. But our Science and our Support Systems are foundering. #DisabilitySOS

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FavierHelga's profile picture.
Helga Favier
 @FavierHelga
12 mag

#WorldMEDay #DisabilitySOS #MEAction @MMissingHolland @MEActNet

MMissingHolland's profile picture. #Actiegroep #MillionsMissing Holland wil betere #zorg & sociale #gelijkheid voor #ME-#patienten.
MillionsMissingNL
 @MMissingHolland
12 mag

𝗦𝗢𝗦 𝘃𝗮𝗻 𝗛𝗲𝗹𝗴𝗮 Ik heb inmiddels 38 jaar ME/CVS. Als er meer onderzoek naar ME/CVS was gedaan: - Zouden de mensen met Long Covid niet hetzelfde hoeven doormaken als wij. - Was er mogelijk al een biomarker gevonden die de biomedische oorsprong van onze ziekte aantoont. -

MMissingHolland's tweet image. 𝗦𝗢𝗦 𝘃𝗮𝗻 𝗛𝗲𝗹𝗴𝗮 Ik heb inmiddels 38 jaar ME/CVS. Als er meer onderzoek naar ME/CVS was gedaan: - Zouden de mensen met Long Covid niet hetzelfde hoeven doormaken als wij. - Was er mogelijk al een biomarker gevonden die de biomedische oorsprong van onze ziekte aantoont. -
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MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
11 mag

Join Jaime Seltzer, Scientific Director at MEAction, on May 12th for #MillionsMissing! Find all the details to show up in DC or online here: meactions.org/millionsmissin… @exceedhergrasp1 #DisabilitySOS #SaveOurScience #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis

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MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
12 mag

Our livestream is a bit delayed! Our goal is to go live on YouTube and Instagram at 1 pm ET now! #MillionsMissing #DisabilitySOS

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RipperMD41's profile picture. Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @RipperMD41@disabled.social T2: same as here @rippermd41.bsky.social
@TheRealMcCoy aka Meghan
 @RipperMD41
13 mag

For the most part I keep it together. I try not to dwell on how small my world is, how much I’ve lost. But the other week it all came rushing over me. #MECFS #DisabilitySOS

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KeirsConscience's profile picture. As a "civilised" society, we should be doing better than this.
Humanity's Conscience
 @KeirsConscience
22 mag

Who knew, when we voted Labour into government, we would be getting a slightly diluted version of the Tories - a government that puts money before people. Won't be making that mistake again! #DisabilityRebellion #DisabilityBenefits #DisabilitySOS

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LizMEActGA's profile picture. Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Liz Burlingame
 @LizMEActGA
5 giu

WOW! So many similarities between @elizansell 's experience with #MECFS and my own. I also had a doctor ask me if I had a boyfriend? As if that was a cure. It's egregious. I thought I was the only one. #pwME #disabilitySOS healthywomen.org/real-women-rea…

LizMEActGA's tweet card. I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
I'm Tired of ME/CFS Being Misunderstood
Fonte: healthywomen.org
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FirstGrace28's profile picture. ❤ for community advocacy activism. Love family. Reading & Music essential. Beach = happy place. #MillionsMissing #pwME OPINIONS ENTIRELY MY OWN!
Holly
 @FirstGrace28
16 apr 2025

Check out the new tees, hats, and bags! #MillionsMissing #DisabilitySOS #pwME #MyalgicEncephalomyelitis #LongCovid

MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
16 apr 2025

Order your new #MillionsMissing 2025: SOS T-shirt, hat, or bag today! bonfire.com/store/meaction… We offer several tees, hats, & bags with our new SOS #MillionsMissing logo. Order by April 20th to ensure you receive your items by May 12th. #pwME #MECFS #LongCovid #DisabilitySOS

MEActNet's tweet image. Order your new #MillionsMissing 2025: SOS T-shirt, hat, or bag today! bonfire.com/store/meaction… We offer several tees, hats, & bags with our new SOS #MillionsMissing logo. Order by April 20th to ensure you receive your items by May 12th. #pwME #MECFS #LongCovid #DisabilitySOS
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ThriftVIP's profile picture. Evolving ThriftVIP #Dissabled #MEFibro ☆Unique.Eclectic☆Style #pwME 30yrs #LC ‘a luta continua’ - the struggle continues #ND Opinions my own #TryingToThrive
Madeleine ThriftVIP®
 @ThriftVIP
15 mag

Petition: Protect Disabled people who cannot work from planned cuts to benefits petition.parliament.uk/petitions/7215… #DisabilitySOS #Disability

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LizMEActGA's profile picture. Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Liz Burlingame
 @LizMEActGA
12 mag

THIS is why I support the MEAction Network! Because people like @exceedhergrasp1 give heart and soul to speaking out for those of us too sick to leave our beds. Please join me in support of their essential work! @MEActNet #DisabilitySOS

MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
11 mag

Join Jaime Seltzer, Scientific Director at MEAction, on May 12th for #MillionsMissing! Find all the details to show up in DC or online here: meactions.org/millionsmissin… @exceedhergrasp1 #DisabilitySOS #SaveOurScience #pwME #MECFS #LongCovid #MyalgicEncephalomyelitis

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VertigoGrl's profile picture. An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her
ALowerhouse
 @VertigoGrl
13 mag

I am one of the #MillionsMissing! We are sending out a #DisabilitySOS 🆘. Take action now, sign this urgent letter calling for the NIH to allocate $50 million to fund the ME/CFS Research Roadmap: tinyurl.com/bdfepbxn. @meactnet #MECFS #pwME #StillSickStillFighting

VertigoGrl's tweet image. I am one of the #MillionsMissing! We are sending out a #DisabilitySOS 🆘. Take action now, sign this urgent letter calling for the NIH to allocate $50 million to fund the ME/CFS Research Roadmap: tinyurl.com/bdfepbxn. @meactnet #MECFS #pwME #StillSickStillFighting
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FirstGrace28's profile picture. ❤ for community advocacy activism. Love family. Reading & Music essential. Beach = happy place. #MillionsMissing #pwME OPINIONS ENTIRELY MY OWN!
Holly
 @FirstGrace28
11 mag

Miss you Beth! And miss Cindy and Laura from Tennessee. We miss those we only knew online or by sharing their stories like Kara Jane and Merryn. Tom and Vanessa...so many more. #MillionsMissing #DisabilitySOS meactions.org/millionsmissin…

FirstGrace28's tweet card. #MEAction is dedicated to taking action in places that affect people with ME, Long COVID, and other chronic illnesses. Join us!
#MILLIONSMISSING | #MEAction
Fonte: meaction.net
MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
11 mag

We have lost too many and that loss is carved into our souls. We are honored to carry them with us. Board member & her brother, Steve Mazur, shared his SOS for #MillionsMissing. "I am here for my sister and sending out an SOS for ME. " Take action! millionsmissing.org

MEActNet's tweet image. We have lost too many and that loss is carved into our souls. We are honored to carry them with us. Board member & her brother, Steve Mazur, shared his SOS for #MillionsMissing. "I am here for my sister and sending out an SOS for ME. " Take action! millionsmissing.org
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LizMEActGA's profile picture. Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Liz Burlingame
 @LizMEActGA
24 giu

How are NC residents suffering with #LongCOVID supposed to access clinical care if their only LC clinic is closed? I'm asking you, @SenThomTillis. @MEActionNC #disabilitySOS #MEforward meaction.net/2025/06/23/pre…

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RipperMD41's profile picture. Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @RipperMD41@disabled.social T2: same as here @rippermd41.bsky.social
@TheRealMcCoy aka Meghan
 @RipperMD41
13 mag

And if you have #MECFS What’s your favorite spark in the dark right now? Researcher? New article? News story that actual gets it right? We need those sparks more than ever right now. #DisabilitySOS #MillionsMissing #MEAwarenessDay

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kirstler31's profile picture. Long Covid since March 2020 😷. Bed-bound due to vaccine induced v severe ME/CFS & POTS. I can’t keep up with DMs, replies may be rare
Kirst
 @kirstler31
12 mag

“It’s shocking how bad you can feel and still be alive” 💔 isn’t that the truth. Thanks so much for using your energy to do this @rhirhiarhii xx #MEAwarenessDay #StillTheSaME #DisabilitySOS @AshleyDalton_MP @wesstreeting

ABrokenBattery's profile picture. Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Adam
 @ABrokenBattery
12 mag

Clip from Re:News segment on #MECFS: “Waking up it’s like you’ve been hit by a truck. Everything’s shaking, vibrating internally. My brain feels inflamed, it’s like you’ve got a concussion.” @rhirhiarhii

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_diatoma's profile picture. ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #MyalgicEncephalomyelitis #GreatestMEdicalScandal
María Richardson
 @_diatoma
14 mag

I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)

_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
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hyperverbal_lee's profile picture. lee 🔞 34 he/him, white, disabled, pwLC, anticolonial, anticapitalist, landback! 🙏🏻 boosting cfs! help me & my bro: ca/vm leannuh47 pp chrischilders922
PLEASE BOOST PINNED
 @hyperverbal_lee
12 lug

URGENT Stalled since Monday Chronically ill people cannot survive capitalism without community support. Step up, support her!!! #DisabilityPrideMonth #DisabilitySOS

ArcticMangoes's profile picture. baby shia. me/cfs. gamedev. against euro-amerikan hegemony. pronoun flexible.
keep your mangos in the fridge
 @ArcticMangoes
8 lug

@LadyLonghaul has many still unmet medical, utility & food needs. $321 are needed ASAP urgently. Total goal is $1881. #LongCovid long haulers who are dedicated heart & soul to community uplifting like she is deserve to be uplifted by the community. Please help her. Share this.

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LizMEActGA's profile picture. Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Liz Burlingame
 @LizMEActGA
24 giu

How are NC residents suffering with #LongCOVID supposed to access clinical care if their only LC clinic is closed? I'm asking you, @SenTedBuddNC. @MEActionNC #disabilitySOS #MEforward meaction.net/2025/06/23/pre…

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LizMEActGA's profile picture. Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Liz Burlingame
 @LizMEActGA
24 giu

How are NC residents suffering with #LongCOVID supposed to access clinical care if their only LC clinic is closed? I'm asking you, @SenThomTillis. @MEActionNC #disabilitySOS #MEforward meaction.net/2025/06/23/pre…

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LizMEActGA's profile picture. Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Liz Burlingame
 @LizMEActGA
24 giu

Federal funding for #LongCOVID has never been more essential! No one knows that better than people with #MECFS. We have sounded the alarm for decades. @meactionga stands with our LC neighbors in NC. @MEActionNC #disabilitySOS #MEforward

MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
23 giu

UNC closed its Long COVID clinic last week after its federal funding ran out. It was the sole #LongCovid clinic in North Carolina. The clinic has been a lifeline to thousands of people living with Long COVID, ME/CFS and POTS since it opened in 2021.

MEActNet's tweet image. UNC closed its Long COVID clinic last week after its federal funding ran out. It was the sole #LongCovid clinic in North Carolina. The clinic has been a lifeline to thousands of people living with Long COVID, ME/CFS and POTS since it opened in 2021.
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LizMEActGA's profile picture. Striving to live deliberately from my bed @MEActionGA #MillionsMissing #pwME #CFS
Liz Burlingame
 @LizMEActGA
5 giu

WOW! So many similarities between @elizansell 's experience with #MECFS and my own. I also had a doctor ask me if I had a boyfriend? As if that was a cure. It's egregious. I thought I was the only one. #pwME #disabilitySOS healthywomen.org/real-women-rea…

LizMEActGA's tweet card. I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome
I'm Tired of ME/CFS Being Misunderstood
Fonte: healthywomen.org
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PlzSolveCFS's profile picture. Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4
Solve ME/CFS Initiative
 @PlzSolveCFS
4 giu

ICYMI: Solve CEO Emily Taylor spoke at the #MIllionsMissing #DisabilitySOS event hosted by @meactnet in DC today. She reflected on her journey as a caregiver & announced our #MECFS Catalyst Award funding for a study by Dr. Akiko Iwasaki. ow.ly/Jzx550VRqz3 #MEAwarenessHour

PlzSolveCFS's tweet card. SolveME

youtube.com

YouTube

SolveME

Fonte: youtube.com
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mfairma's profile picture. ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
Matt Lazell-Fairman
 @mfairma
4 giu

We’re sending out a #DisabilitySOS to @alanalda! Bad science & stigmatization have robbed pts w ME/CFS of 4 decades of progress. We're on cusp of change, but we need help! Would love to see you discuss ME on @alda podcast! 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME

mfairma's tweet image. We’re sending out a #DisabilitySOS to @alanalda! Bad science & stigmatization have robbed pts w ME/CFS of 4 decades of progress. We're on cusp of change, but we need help! Would love to see you discuss ME on @alda podcast! 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME
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WorldMEAlliance's profile picture. An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
World ME Alliance
 @WorldMEAlliance
30 mag

We fight for every person with ME. Wherever they live, whether they are mild or very severe, every single person deserves care, support and research into their disease. And every single person has our World ME Alliance backing them. #DisabilitySOS #DisabilityJustice #MECFS

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JohnVsJonVsME's profile picture. #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
@JohnVsJonVsME
 @JohnVsJonVsME
27 mag

We’re sending out a #DisabilitySOS to @jaketapper! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds

JohnVsJonVsME's tweet image. We’re sending out a #DisabilitySOS to @jaketapper! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds
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JohnVsJonVsME's profile picture. #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
@JohnVsJonVsME
 @JohnVsJonVsME
23 mag

We’re sending out a #DisabilitySOS to @DavidFajgenbaum @EveryCure! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

JohnVsJonVsME's tweet image. We’re sending out a #DisabilitySOS to @DavidFajgenbaum @EveryCure! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
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JohnVsJonVsME's profile picture. #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
@JohnVsJonVsME
 @JohnVsJonVsME
23 mag

We’re sending out a #DisabilitySOS to @Cooperthings_! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds

JohnVsJonVsME's tweet image. We’re sending out a #DisabilitySOS to @Cooperthings_! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds
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JohnVsJonVsME's profile picture. #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
@JohnVsJonVsME
 @JohnVsJonVsME
23 mag

We’re sending out a #DisabilitySOS to @saquon! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds

JohnVsJonVsME's tweet image. We’re sending out a #DisabilitySOS to @saquon! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds
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JohnVsJonVsME's profile picture. #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
@JohnVsJonVsME
 @JohnVsJonVsME
23 mag

We’re sending out a #DisabilitySOS to @JalenHurts! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds

JohnVsJonVsME's tweet image. We’re sending out a #DisabilitySOS to @JalenHurts! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds
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JohnVsJonVsME's profile picture. #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
@JohnVsJonVsME
 @JohnVsJonVsME
23 mag

We’re sending out a #DisabilitySOS to @jordan_mailata! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds

JohnVsJonVsME's tweet image. We’re sending out a #DisabilitySOS to @jordan_mailata! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth #GoBirds
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WorldMEAlliance's profile picture. An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
World ME Alliance
 @WorldMEAlliance
22 mag

📢 An ME/CFS Research Foundation report shows #LongCOVID and #MECFS have cost Germany over €250bn in 5 years. Governments must invest in research and care, not only because it is humane but also economically necessary. #DisabilitySOS #WorldMEDay buff.ly/I4VB0xw

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KeirsConscience's profile picture. As a "civilised" society, we should be doing better than this.
Humanity's Conscience
 @KeirsConscience
22 mag

Who knew, when we voted Labour into government, we would be getting a slightly diluted version of the Tories - a government that puts money before people. Won't be making that mistake again! #DisabilityRebellion #DisabilityBenefits #DisabilitySOS

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hatetorycuts's profile picture. For hate Tory cuts read; New Labour 30 years working NHS, cancer survivor x2 in 4yrs, Life changing spinal injury crazy cat lover & bats about gardening
💙Susan Robinson 🌹🐞💙🐝🐈🐈🐝💙
 @hatetorycuts
22 mag

Has @UKLabour done u turn on Winter Fuel Allowance to Distract everyone away from savage cuts to disability benefits Am not fooled by them Am not mollified Reform is Tory Speak for savage cuts Many will die if this goes ahead #DisabilitySOS

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JohnVsJonVsME's profile picture. #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
@JohnVsJonVsME
 @JohnVsJonVsME
21 mag

We’re sending out a #DisabilitySOS to @YvonneOrji! Will you help us raise awareness about #GreatestMEdicalScandal and help us bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

JohnVsJonVsME's tweet image. We’re sending out a #DisabilitySOS to @YvonneOrji! Will you help us raise awareness about #GreatestMEdicalScandal and help us bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth
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VertigoGrl's profile picture. An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her
ALowerhouse
 @VertigoGrl
13 mag

I am one of the #MillionsMissing! We are sending out a #DisabilitySOS 🆘. Take action now, sign this urgent letter calling for the NIH to allocate $50 million to fund the ME/CFS Research Roadmap: tinyurl.com/bdfepbxn. @meactnet #MECFS #pwME #StillSickStillFighting

VertigoGrl's tweet image. I am one of the #MillionsMissing! We are sending out a #DisabilitySOS 🆘. Take action now, sign this urgent letter calling for the NIH to allocate $50 million to fund the ME/CFS Research Roadmap: tinyurl.com/bdfepbxn. @meactnet #MECFS #pwME #StillSickStillFighting
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MEActNetUK's profile picture. #MEAction UK focuses on campaigning and advocacy in the UK a part of the charity MEAction UK.
#MEAction Network UK
 @MEActNetUK
12 mag

The ME Support Group, Chorley. has made this heartfelt SOS and sent it to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk Please like and share these wonderful SOS messages. ❤️ #MillionsMissing #DisabilitySOS

MEActNetUK's tweet image. The ME Support Group, Chorley. has made this heartfelt SOS and sent it to @The_MRC, @wesstreeting, @AshleyDalton_MP, @CMO_England, @DHSCgovuk Please like and share these wonderful SOS messages. ❤️ #MillionsMissing #DisabilitySOS
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MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
23 apr 2025

Sign up now for our storytelling training coming up this Sunday, April 27th at 12 pm PT/ 3 pm ET! Expert storyteller, Kirsten Ferrell, will help us articulate our SOS stories in a quick and effective way. ow.ly/iaow50VGxBN #MillionsMissing #DisabilitySOS #PwME

MEActNet's tweet image. Sign up now for our storytelling training coming up this Sunday, April 27th at 12 pm PT/ 3 pm ET! Expert storyteller, Kirsten Ferrell, will help us articulate our SOS stories in a quick and effective way. ow.ly/iaow50VGxBN #MillionsMissing #DisabilitySOS #PwME
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MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
28 apr

You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - 2 weeks from today! Join us in DC & online! We will be sounding an SOS at the nation’s capitol and across social media! All you need to know can be found here: meactions.org/millionsmissin… #PwME #MECFS

MEActNet's tweet image. You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - 2 weeks from today! Join us in DC & online! We will be sounding an SOS at the nation’s capitol and across social media! All you need to know can be found here: meactions.org/millionsmissin… #PwME #MECFS
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MEActNetUK's profile picture. #MEAction UK focuses on campaigning and advocacy in the UK a part of the charity MEAction UK.
#MEAction Network UK
 @MEActNetUK
17 mag

After a hectic #MillionsMissing it's time to relax, what better way than taking part in the Tea Party for ME tomorrow ? 🫖🧁 We would be delighted if you selected #MEAction UK for a donation. ow.ly/3Tk250VOGPi #DisabilitySOS #MECFS #LongCovid #MyalgicEncephalomyelitis

MEActNetUK's tweet image. After a hectic #MillionsMissing it's time to relax, what better way than taking part in the Tea Party for ME tomorrow ? 🫖🧁 We would be delighted if you selected #MEAction UK for a donation. ow.ly/3Tk250VOGPi #DisabilitySOS #MECFS #LongCovid #MyalgicEncephalomyelitis
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MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
11 apr 2025

We are heading to DC on May 12th for #MillionsMissing 2025! Sign Up to Join Us in DC: forms.gle/y3n7BSbgysyvrB… The planned protest will be from 12-2pm ET on the north side of the Capitol Building. Organize locally or join from home: meactions.org/millionsmissin… #pwME #DisabilitySOS

MEActNet's tweet image. We are heading to DC on May 12th for #MillionsMissing 2025! Sign Up to Join Us in DC: forms.gle/y3n7BSbgysyvrB… The planned protest will be from 12-2pm ET on the north side of the Capitol Building. Organize locally or join from home: meactions.org/millionsmissin… #pwME #DisabilitySOS
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MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
15 apr 2025

JOIN US by hosting your own #MillionsMissing event on May 12th in your hometown! Fill out this form if you are interested in hosting a #MillionsMissing event - or connecting with an event already being planned - in your hometown: docs.google.com/forms/d/e/1FAI… #DisabilitySOS #PwME

MEActNet's tweet image. JOIN US by hosting your own #MillionsMissing event on May 12th in your hometown! Fill out this form if you are interested in hosting a #MillionsMissing event - or connecting with an event already being planned - in your hometown: docs.google.com/forms/d/e/1FAI… #DisabilitySOS #PwME
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meactionscot's profile picture. #MEAction Scotland focuses on campaigning and advocacy In Scotland as part of the charity MEAction UK.
#MEAction Scotland
 @meactionscot
12 mag

Visit MEAction UK's page to see more SOS messages and there’s still time to share your own SOS on social media today if you’re able. #MillionsMissing #DisabilitySOS

meactionscot's tweet image. Visit MEAction UK's page to see more SOS messages and there’s still time to share your own SOS on social media today if you’re able. #MillionsMissing #DisabilitySOS
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MEActNet's profile picture. A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
#MEAction Network
 @MEActNet
2 mag

May 12th is coming soon! Time to prepare for #MillionsMissing! If your to do list this weekend looks like this, we can help! Just click on this toolkit: docs.google.com/document/d/1_f… #DIsabilitySOS #PwME #MECFS #Weekend

MEActNet's tweet image. May 12th is coming soon! Time to prepare for #MillionsMissing! If your to do list this weekend looks like this, we can help! Just click on this toolkit: docs.google.com/document/d/1_f… #DIsabilitySOS #PwME #MECFS #Weekend
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_diatoma's profile picture. ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #MyalgicEncephalomyelitis #GreatestMEdicalScandal
María Richardson
 @_diatoma
14 mag

I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)

_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
_diatoma's tweet image. I’m sending out a @JohnVsJonVsME #MillionsMissing #DisabilitySOS to health justice leaders #EndTB - doctors, authors, and advocates whose work I appreciate immensely: @MukherjeeJoia @blackangelsbook @johngreen @VidyaKrishnan (1/8)
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Giada_Da_Ros's profile picture. TV critic; President of the CFS/ME Italian Association (and CFS/ME patient since 1990); Socratic.
Giada Da Ros
 @Giada_Da_Ros
12 mag

SOS 🛟 Abbiamo bisogno di più risorse, più supporto, più ricerca! Questo è vero per ogni Paese del mondo. #DisabilitySOS #MillionsMissing #WorldMEDay #mecfs #cfsme #Meawareness #Encefalomielitemialgica

Giada_Da_Ros's tweet image. SOS 🛟 Abbiamo bisogno di più risorse, più supporto, più ricerca! Questo è vero per ogni Paese del mondo. #DisabilitySOS #MillionsMissing #WorldMEDay #mecfs #cfsme #Meawareness #Encefalomielitemialgica
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_diatoma's profile picture. ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #MyalgicEncephalomyelitis #GreatestMEdicalScandal
María Richardson
 @_diatoma
9 mag

Critical funding for #ME research, care, and support (achieved through immense labor by very ill people, and still far from commensurate to disease burden) is currently in danger in the U.S., so I'm joining @MEActNet in putting out a #DisabilitySOS. (5/x)

_diatoma's tweet image. Critical funding for #ME research, care, and support (achieved through immense labor by very ill people, and still far from commensurate to disease burden) is currently in danger in the U.S., so I'm joining @MEActNet in putting out a #DisabilitySOS. (5/x)
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