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#systemicscleroderma 検索結果

swagger372's profile picture.
Sarah
 @swagger372
2023/06/02

June is Scleroderma Awareness Month. Scleroderma is a progressive, debilitating autoimmune disease for which there is no cure. I was diagnosed in 2021. I’m still hoping for better treatments or a cure. #SystemicScleroderma #SystemicSclerosis

swagger372's tweet image. June is Scleroderma Awareness Month. Scleroderma is a progressive, debilitating autoimmune disease for which there is no cure. I was diagnosed in 2021. I’m still hoping for better treatments or a cure. #SystemicScleroderma #SystemicSclerosis
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SaskScleroderma's profile picture. Official Scleroderma Association of Saskatchewan. Follow us here for updates.
Scleroderma Sask
 @SaskScleroderma
2020/06/29

A huge thank you to a long time #scleroderma supporter who sent this for us to share. “Hi all! Just thought I would share the song I wrote in 1995, Country Waltz. It was about my partner, who later passed from #systemicscleroderma on Dec. 25, 2002.”

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KCHill7's profile picture. CEO, Founder & Owner An American Treasure ▪︎Leader/Trainer/Speaker ▪︎Vocalist Metro & Kat ▪︎ Wife & Mom Against Negativity & Internet Sabotagers
KC Hill
 @KCHill7
2018/04/29

I am beyond focused & all in to win this battle against #SystemicScleroderma & #SystemicLupus Never let anything that happens in life beat you. You only fail when you choose not to fight to win 💞 Keep getting up when you fall & fighting until you WIN #KatStrong #TeamKC #MyLife

KCHill7's tweet image. I am beyond focused & all in to win this battle against #SystemicScleroderma & #SystemicLupus Never let anything that happens in life beat you. You only fail when you choose not to fight to win 💞 Keep getting up when you fall & fighting until you WIN #KatStrong #TeamKC #MyLife
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RaisingRare's profile picture. Systemic Scleroderma Warrior, HSCT survivor, ILD,LongCovid, POTS, Sjögren’s. Rare Patient Advocate. Mom to a child w/Xeroderma Pigmentosum (XP) & one w/SSc too.
Elle Kei
 @RaisingRare
2018/03/14

When you’re planning to undergo #HSCT for #systemicscleroderma your clinicians want to be sure everything checks out before you get the all clear to proceed.😵So many vials drawn and a few more tests to go. Moving forward with lots of HOPE! #ThisIsScleroderma

RaisingRare's tweet image. When you’re planning to undergo #HSCT for #systemicscleroderma your clinicians want to be sure everything checks out before you get the all clear to proceed.😵So many vials drawn and a few more tests to go. Moving forward with lots of HOPE! #ThisIsScleroderma
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CreakyJoints's profile picture. Digital community for millions of arthritis patients and caregivers worldwide. Part of @GHLForg | support@ghlf.org
CreakyJoints.org
@CreakyJoints
2023/11/11

“Evaluations of heart involvement in #SystemicScleroderma should happen annually.” - Francesco Boin, MD. Are SS patients getting this thorough of an #evaluation every year? #ACR23

CreakyJoints's tweet image. “Evaluations of heart involvement in #SystemicScleroderma should happen annually.” - Francesco Boin, MD. Are SS patients getting this thorough of an #evaluation every year? #ACR23
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candidam91's profile picture. Freelance speech and campaign writer & editor. Dedicated wife & mother. Supposed fan(atic) of politics, debate, music, theater & a free press. Be involved!
Candi Miller
 @candidam91
2020/06/30

A disease that needs to meet its end. Please share info, donate & pray for the 100,000 like me w/its organ-killing, rarer version-- #SystemicScleroderma & the 200K plus desperately suffering the pain of localized #Scleroderma. #SclerodermaIsHard HelpHeal: scleroderma.org/site/SPageServ…

candidam91's tweet image. A disease that needs to meet its end. Please share info, donate & pray for the 100,000 like me w/its organ-killing, rarer version-- #SystemicScleroderma & the 200K plus desperately suffering the pain of localized #Scleroderma. #SclerodermaIsHard HelpHeal: scleroderma.org/site/SPageServ…
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shineonrare's profile picture. The Founder is Sika. She's a marketer, fundraiser, and works at Travere. She's her Sister's sister. Views shared here are her own.
Shine Light
 @shineonrare
2016/10/31

Hey Guys. This is Ulrika. She has #systemicsclerosis, also known as #systemicscleroderma. … ift.tt/2fyaXJl

shineonrare's tweet image. Hey Guys. This is Ulrika. She has #systemicsclerosis, also known as #systemicscleroderma. … ift.tt/2fyaXJl
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ScleroIndia's profile picture. A Charitable Trust and Patient Support Group
Scleroderma India
 @ScleroIndia
2024/05/07

Scleroderma, a chronic autoimmune disease that affects the connective tissue, can significantly impact a person's mental health due to its physical symptoms, uncertain prognosis, and effects on daily life. #SclerodermaIndia #SystemicScleroderma #MentalWellness #MentalHealth

ScleroIndia's tweet image. Scleroderma, a chronic autoimmune disease that affects the connective tissue, can significantly impact a person's mental health due to its physical symptoms, uncertain prognosis, and effects on daily life. #SclerodermaIndia #SystemicScleroderma #MentalWellness #MentalHealth
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ScleroIndia's profile picture. A Charitable Trust and Patient Support Group
Scleroderma India
 @ScleroIndia
2024/06/25

Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial

ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
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TheresePope's profile picture. Sjogren's patient & autoimmune disease advocate
T
 @TheresePope
/09/16

Paid interviews**#SavvyCoop is looking for diagnosed patients (or caregivers to someone with) one of the following: #Rheumatoid Arthritis (RA) #SystemicScleroderma (SSc) #Sjögren’s #Lupus #Sarcoidosis #Myositis 18+ worldwide apply.savvy.coop/awareness-on-a…

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TheresePope's profile picture. Sjogren's patient & autoimmune disease advocate
T
 @TheresePope
/09/16

Paid interviews**#SavvyCoop is looking for diagnosed patients (or caregivers to someone with) one of the following: #Rheumatoid Arthritis (RA) #SystemicScleroderma (SSc) #Sjögren’s #Lupus #Sarcoidosis #Myositis 18+ worldwide apply.savvy.coop/awareness-on-a…

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ScleroDoll's profile picture. 𝓛𝓲𝓯𝓮 𝔀𝓲𝓽𝓱 𝓼𝓬𝓵𝓮𝓻𝓸𝓭𝓮𝓻𝓶𝓪 🩹 ꜰᴀꜱʜɪᴏɴ ᴍᴏᴅᴇʟ 📸 🦋 𝕿𝖍𝖗𝖔𝖚𝖌𝖍 𝕲𝖔𝖉 𝖜𝖊 𝕮𝖔𝖓𝖖𝖚𝖊𝖗 ♡
Kee 🦋
 @ScleroDoll
/12/16

having a auto immune condition, & trying to stay strong be hard sometimes, BUT GOD wouldn’t have gave me this battle if i wasn’t BUILT for IT. 💪🏽🎗️#SystemicScleroderma #Lupus

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ScleroIndia's profile picture. A Charitable Trust and Patient Support Group
Scleroderma India
 @ScleroIndia
2024/06/25

Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial

ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
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ScleroIndia's profile picture. A Charitable Trust and Patient Support Group
Scleroderma India
 @ScleroIndia
2024/05/07

Scleroderma, a chronic autoimmune disease that affects the connective tissue, can significantly impact a person's mental health due to its physical symptoms, uncertain prognosis, and effects on daily life. #SclerodermaIndia #SystemicScleroderma #MentalWellness #MentalHealth

ScleroIndia's tweet image. Scleroderma, a chronic autoimmune disease that affects the connective tissue, can significantly impact a person's mental health due to its physical symptoms, uncertain prognosis, and effects on daily life. #SclerodermaIndia #SystemicScleroderma #MentalWellness #MentalHealth
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RaisingRare's profile picture. Systemic Scleroderma Warrior, HSCT survivor, ILD,LongCovid, POTS, Sjögren’s. Rare Patient Advocate. Mom to a child w/Xeroderma Pigmentosum (XP) & one w/SSc too.
Elle Kei
 @RaisingRare
2024/01/18

This month marks one year with long covid. By far the most painful & difficult thing I have endured and that’s saying a lot considering I survived #HSCT for #SystemicScleroderma after flat lining 4x. Please #HelpLongCovid

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CreakyJoints's profile picture. Digital community for millions of arthritis patients and caregivers worldwide. Part of @GHLForg | support@ghlf.org
CreakyJoints.org
@CreakyJoints
2023/11/11

“Evaluations of heart involvement in #SystemicScleroderma should happen annually.” - Francesco Boin, MD. Are SS patients getting this thorough of an #evaluation every year? #ACR23

CreakyJoints's tweet image. “Evaluations of heart involvement in #SystemicScleroderma should happen annually.” - Francesco Boin, MD. Are SS patients getting this thorough of an #evaluation every year? #ACR23
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swagger372's profile picture.
Sarah
 @swagger372
2023/06/02

June is Scleroderma Awareness Month. Scleroderma is a progressive, debilitating autoimmune disease for which there is no cure. I was diagnosed in 2021. I’m still hoping for better treatments or a cure. #SystemicScleroderma #SystemicSclerosis

swagger372's tweet image. June is Scleroderma Awareness Month. Scleroderma is a progressive, debilitating autoimmune disease for which there is no cure. I was diagnosed in 2021. I’m still hoping for better treatments or a cure. #SystemicScleroderma #SystemicSclerosis
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"#systemicscleroderma" に一致する結果はありません
swagger372's profile picture.
Sarah
 @swagger372
2023/06/02

June is Scleroderma Awareness Month. Scleroderma is a progressive, debilitating autoimmune disease for which there is no cure. I was diagnosed in 2021. I’m still hoping for better treatments or a cure. #SystemicScleroderma #SystemicSclerosis

swagger372's tweet image. June is Scleroderma Awareness Month. Scleroderma is a progressive, debilitating autoimmune disease for which there is no cure. I was diagnosed in 2021. I’m still hoping for better treatments or a cure. #SystemicScleroderma #SystemicSclerosis
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shineonrare's profile picture. The Founder is Sika. She's a marketer, fundraiser, and works at Travere. She's her Sister's sister. Views shared here are her own.
Shine Light
 @shineonrare
2016/10/31

Hey Guys. This is Ulrika. She has #systemicsclerosis, also known as #systemicscleroderma. … ift.tt/2fyaXJl

shineonrare's tweet image. Hey Guys. This is Ulrika. She has #systemicsclerosis, also known as #systemicscleroderma. … ift.tt/2fyaXJl
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KCHill7's profile picture. CEO, Founder & Owner An American Treasure ▪︎Leader/Trainer/Speaker ▪︎Vocalist Metro & Kat ▪︎ Wife & Mom Against Negativity & Internet Sabotagers
KC Hill
 @KCHill7
2018/04/29

I am beyond focused & all in to win this battle against #SystemicScleroderma & #SystemicLupus Never let anything that happens in life beat you. You only fail when you choose not to fight to win 💞 Keep getting up when you fall & fighting until you WIN #KatStrong #TeamKC #MyLife

KCHill7's tweet image. I am beyond focused & all in to win this battle against #SystemicScleroderma & #SystemicLupus Never let anything that happens in life beat you. You only fail when you choose not to fight to win 💞 Keep getting up when you fall & fighting until you WIN #KatStrong #TeamKC #MyLife
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SFGWDC's profile picture. Scleroderma Foundation Greater Washington, DC Chapter is a nonprofit for people with scleroderma, their families & friends. Disclaimer: https://t.co/JdrgscnAYd
Scleroderma Fndtn GW
 @SFGWDC
2019/04/29

SEE YOU ON MAY18TH - REGISTER TODAY FOR OUR #SCLERODERMA WALK/RUN! scleroderma.org/steppingoutbal… Help us increase awareness about #scleroderma & raise critical funds for scleroderma research! #systemicscleroderma #raynauds #spoonies

SFGWDC's tweet image. SEE YOU ON MAY18TH - REGISTER TODAY FOR OUR #SCLERODERMA WALK/RUN! scleroderma.org/steppingoutbal… Help us increase awareness about #scleroderma & raise critical funds for scleroderma research! #systemicscleroderma #raynauds #spoonies
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ACRSimpleTasks's profile picture. @ACRheum Simple Tasks raises awareness about rheumatic diseases & the role of rheumatologists.
ACR Simple Tasks
 @ACRSimpleTasks
2018/02/06

It was just 2 weeks before her 16th birthday when Tierra Springer was diagnosed with systemic scleroderma – a disease of which she knew nothing. Read more: acr.tw/2Dthwp2 #Rheum #SystemicScleroderma #Scleroderma

ACRSimpleTasks's tweet image. It was just 2 weeks before her 16th birthday when Tierra Springer was diagnosed with systemic scleroderma – a disease of which she knew nothing. Read more: acr.tw/2Dthwp2 #Rheum #SystemicScleroderma #Scleroderma
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candidam91's profile picture. Freelance speech and campaign writer & editor. Dedicated wife & mother. Supposed fan(atic) of politics, debate, music, theater & a free press. Be involved!
Candi Miller
 @candidam91
2020/06/30

A disease that needs to meet its end. Please share info, donate & pray for the 100,000 like me w/its organ-killing, rarer version-- #SystemicScleroderma & the 200K plus desperately suffering the pain of localized #Scleroderma. #SclerodermaIsHard HelpHeal: scleroderma.org/site/SPageServ…

candidam91's tweet image. A disease that needs to meet its end. Please share info, donate & pray for the 100,000 like me w/its organ-killing, rarer version-- #SystemicScleroderma & the 200K plus desperately suffering the pain of localized #Scleroderma. #SclerodermaIsHard HelpHeal: scleroderma.org/site/SPageServ…
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RaisingRare's profile picture. Systemic Scleroderma Warrior, HSCT survivor, ILD,LongCovid, POTS, Sjögren’s. Rare Patient Advocate. Mom to a child w/Xeroderma Pigmentosum (XP) & one w/SSc too.
Elle Kei
 @RaisingRare
2018/03/14

When you’re planning to undergo #HSCT for #systemicscleroderma your clinicians want to be sure everything checks out before you get the all clear to proceed.😵So many vials drawn and a few more tests to go. Moving forward with lots of HOPE! #ThisIsScleroderma

RaisingRare's tweet image. When you’re planning to undergo #HSCT for #systemicscleroderma your clinicians want to be sure everything checks out before you get the all clear to proceed.😵So many vials drawn and a few more tests to go. Moving forward with lots of HOPE! #ThisIsScleroderma
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CreakyJoints's profile picture. Digital community for millions of arthritis patients and caregivers worldwide. Part of @GHLForg | support@ghlf.org
CreakyJoints.org
@CreakyJoints
2023/11/11

“Evaluations of heart involvement in #SystemicScleroderma should happen annually.” - Francesco Boin, MD. Are SS patients getting this thorough of an #evaluation every year? #ACR23

CreakyJoints's tweet image. “Evaluations of heart involvement in #SystemicScleroderma should happen annually.” - Francesco Boin, MD. Are SS patients getting this thorough of an #evaluation every year? #ACR23
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HealthStories's profile picture. The world is a better place when every story is shared. Join to participate in interviews, awareness campaigns, research & more #HealthStoriesProject
Health Stories Project
 @HealthStories
2019/10/07

"You’re allowed to be upset. You’re allowed to feel however you need to feel – it’s just what you do after that [that is important].” bit.ly/2oxlZUW #systemicscleroderma #scleroderma

HealthStories's tweet image. "You’re allowed to be upset. You’re allowed to feel however you need to feel – it’s just what you do after that [that is important].” bit.ly/2oxlZUW #systemicscleroderma #scleroderma
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ScleroIndia's profile picture. A Charitable Trust and Patient Support Group
Scleroderma India
 @ScleroIndia
2024/05/07

Scleroderma, a chronic autoimmune disease that affects the connective tissue, can significantly impact a person's mental health due to its physical symptoms, uncertain prognosis, and effects on daily life. #SclerodermaIndia #SystemicScleroderma #MentalWellness #MentalHealth

ScleroIndia's tweet image. Scleroderma, a chronic autoimmune disease that affects the connective tissue, can significantly impact a person's mental health due to its physical symptoms, uncertain prognosis, and effects on daily life. #SclerodermaIndia #SystemicScleroderma #MentalWellness #MentalHealth
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ScleroIndia's profile picture. A Charitable Trust and Patient Support Group
Scleroderma India
 @ScleroIndia
2024/06/25

Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial

ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
ScleroIndia's tweet image. Consistent physiotherapy and dedicated medical support can significantly improve muscle strength and overall health in systemic sclerosis patients. #SclerodermaIndia #SystemicScleroderma #physiontherapy #testimonial
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