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SclerodermaL's profile picture. Welcome to Scleroderma Living online magazine! Live...Laugh...Love!

Scleroderma Living

@SclerodermaL

Welcome to Scleroderma Living online magazine! Live...Laugh...Love!

75帖子 95关注者 55正在关注
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SclerodermaL's profile picture.
Scleroderma Living
 @SclerodermaL
2023年4月6日

I am fundraising for the Epilepsy Foundation of America for my 5 year old grandson who has a severe form of epilepsy called Lennox Gestaut Syndrome (LGS). I am doing the Walk to End Epilepsy on May 6th, 2023 in Washington D.C. Please donate! donate.epilepsy.com/index.cfm?fuse…

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Scleroderma Living
 @SclerodermaL
2023年3月1日

Empire State Building is purple, green, blue and pink for Rare Disease Day! Picture from my living room window. #curescleroderma #scleroderma #cureepilepsy #lennoxgastautsyndrome

SclerodermaL's tweet image. Empire State Building is purple, green, blue and pink for Rare Disease Day! Picture from my living room window. #curescleroderma #scleroderma #cureepilepsy #lennoxgastautsyndrome
SclerodermaL's tweet image. Empire State Building is purple, green, blue and pink for Rare Disease Day! Picture from my living room window. #curescleroderma #scleroderma #cureepilepsy #lennoxgastautsyndrome
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Scleroderma Living
 @SclerodermaL
2022年8月17日

Do you want to work smart, work when your illness allows you without worrying every time you have a flare? Review this 100% Free Course to create another income stream, 90minuteaffiliatechallenge.com/?fpr=fw4lmhttp…

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Scleroderma Living
 @SclerodermaL
2022年4月7日

Israeli researchers find potential answer to deadly autoimmune disease flip.it/HB-dxh

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Scleroderma Living
 @SclerodermaL
2022年1月18日

US offers residents 4 free at home COVID-19 test kits ordered via the post office: special.usps.com/testkits

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Scleroderma Living
 @SclerodermaL
2021年12月9日

Coronavirus (COVID-19) Update: FDA Authorizes New Long-Acting Monoclonal Antibodies for Pre-exposure Prevention of COVID-19 in Certain Individuals | FDA fda.gov/news-events/pr…

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Scleroderma Living
 @SclerodermaL
2021年10月5日

Are you overwhelmed by Scleroderma? Juggling jobs, spouses, kids, parents, healthcare, chores! Do you need HELP!!!!!? Michael Benjamin, a Scleroderma survivor, has put together Workshops to help you juggle these challenges. Check out his workshops: michaelfbenjamin.com/group-workshop…

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Scleroderma Living
 @SclerodermaL
2021年9月29日

Microneedle Patch Delivers Oxygen to Chronic Wounds | Medgadget medgadget.com/2021/09/micron…

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Scleroderma Living
 @SclerodermaL
2021年7月11日

Checking these out for my daughter who is getting engaged soon. Shh, not announced yet. ;-) Amazon Wedding Registry amzn.to/3r0SyH9 Amazon Baby Registry amzn.to/3r2AxYK

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Scleroderma Living
 @SclerodermaL
2021年7月11日

Been checking out some Amazon Services. I like these so far. Check out Amazon Prime Wardrobe amzn.to/2TQy9sh Check out Personal Shopper by Prime Wardrobe amzn.to/3hvJhn3 Check out Audible Premium Plus and Get Up to Two Free Audiobooks amzn.to/3e6Wh0F

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Scleroderma Living
 @SclerodermaL
2021年5月2日

Coronavirus vaccine effective on autoimmune disease patients, study finds flip.it/0zfXyE

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Scleroderma Living
 @SclerodermaL
2021年4月8日

Systemic sclerosis accurately screened on laptop | The Engineer The Engineer theengineer.co.uk/systemic-scler…

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Scleroderma Living
 @SclerodermaL
2021年3月4日

My experience getting my first dose of vaccine at the Javits Center in NYC was efficient, National Guard and NY State Police men/women were professional, knowledgeable, courteous & helpful. Done & out in 30 minutes. Thank you! @NYGovCuomo @nyspolice @NationalGuardNY

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Scleroderma Living
 @SclerodermaL
2021年1月31日

Understanding Medical Research: Your Facebook Friend is Wrong | Coursera coursera.org/learn/medical-…

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Scleroderma Living
 @SclerodermaL
2021年1月31日

Understanding Clinical Research: Behind the Statistics | Coursera coursera.org/learn/medical-…

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Scleroderma Living
 @SclerodermaL
2020年12月25日

Happy Holidays to everyone around the world from Scleroderma Living! #scleroderamliving #scleroderma

SclerodermaL's tweet image. Happy Holidays to everyone around the world from Scleroderma Living! #scleroderamliving #scleroderma
SclerodermaL's tweet image. Happy Holidays to everyone around the world from Scleroderma Living! #scleroderamliving #scleroderma
SclerodermaL's tweet image. Happy Holidays to everyone around the world from Scleroderma Living! #scleroderamliving #scleroderma
SclerodermaL's tweet image. Happy Holidays to everyone around the world from Scleroderma Living! #scleroderamliving #scleroderma
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FPoHp40008u68's profile picture.

Celina

@FPoHp40008u68
Rheumatol_Int's profile picture. Indexed by Medline, Scopus, Embase, Science Citation Index Expanded,Journal Impact Factor 2.9 (2024; Q2 in Rheumatology), CiteScore 7 (2024; Q1 in Rheumatology)

Rheumatology International

@Rheumatol_Int
gwineveve301's profile picture. Moo I'm a fish. I read fanfiction and say odd things for no reason other than forgetting to think in advance. Any form of music will do

Jen Ridgeway

@gwineveve301
Only1RC's profile picture.

RC

@Only1RC
ClinRheumatol's profile picture. Clinical Rheumatology - Journal of the International League of Associations for Rheumatology 2024 Impact Factor: 2.8 Editor-in-Chief: Prof. Adewale Adebajo

ClinRheumatol

@ClinRheumatol
ScleroCare's profile picture. 🌿 Empowering Scleroderma Patients 🌟 📚 Education | 💡 Resources | 🩺 Support 🔗 Explore more: https://t.co/u7Mm1lZk0w

ScleroCare

@ScleroCare
jeannierberg4's profile picture. Organic apple farmer

Jeannie R Berg

@jeannierberg4
NoTruffe's profile picture. 27 ans d'ind. pharma, 25 d'assoc (fin de vie, sos inceste) psy pour toujours, #scléroderm à l'occasion je suis née, je vis....et je mourrai...what else?

No Truffe😷💉💉💉🦠💉🦠🦠🦠🐶

@NoTruffe
ThayerDana41668's profile picture.

Dana Thayer

@ThayerDana41668
leenastrong28's profile picture. 📍Founder Sclerowarriorsg 😷🤒 📍Committee PHSINGAPORE 💉Diagnosed with Systemic Sclerosis since 2009 💉Pulmonary Arterial Hypertension since 2013

Leenastrong28

@leenastrong28
MelissaKindler's profile picture.

Melissa Kindler

@MelissaKindler
Mshutch25's profile picture.

CDNurse2000

@Mshutch25
TNirwani's profile picture.

wonder

@TNirwani
MeSklero's profile picture. Sclerowarrier since 2015, fck Scleroderma

Sklero&me

@MeSklero
Juliethewarrior's profile picture. She/her Stem Cell Transplant for #Scleroderma. #HSCT Live every day like it's your last. #RN #NativeAmerican #Potawatomi #TrailOfDeath #Kickapoo #FuckTrump

Julie🟧 🟦

@Juliethewarrior
Jean42196333's profile picture.

Jean

@Jean42196333
unsorrisoraro's profile picture.

Mariachiara Vasile

@unsorrisoraro
Smileyaak's profile picture.

Faye Smiley-Aakre

@Smileyaak
LaurieRutland's profile picture.

Lar

@LaurieRutland
Cure_Cole's profile picture. Mom to Cole, diagnosed with #SYNGAP1. Working hard with @curesyngap1 to improve lives of those with #epilepsy #SIB #autism #hypotonia #ID and their families!

Jess Fares

@Cure_Cole
Valton36893337's profile picture. ...

Valton

@Valton36893337
NancyWolfteich's profile picture. Retired Nurse 🚫DM

Nancy Wolfteich🌊🌊🌊🌊Vote Blue no matter who !

@NancyWolfteich
JyotiBudhatho10's profile picture. Surviving systemic scleroderma with Taylor Swift’s music folklore, Speak Now, & evermore heal me, her lyrics break me, yet make me whole again. #Fearless

Hi, It's me

@JyotiBudhatho10
CureusRheum's profile picture. The Cureus Journal of Medical Science | #OpenAccess, #PeerReview | Rheumatology Specialties | @CureusInc

Cureus Rheumatology

@CureusRheum
RaffaellaGallo_'s profile picture. Cell biologist. @Fondaz_Veronesi Postdoctoral Fellow at UMG, Catanzaro 🇮🇹 - PhD from @pelkmanslab , University of Zurich🇨🇭

Raffaella Gallo

@RaffaellaGallo_
erikalunac's profile picture. retired/teacher on hiatus, raising young men with my Bombon, doing my best to stay present, vulnerable & curious-keeping my moon in scorpio in check 😉 ya dig?

Erika Luna-C

@erikalunac
sirsingsalot1's profile picture. #BLM 🇨🇦🇺🇸🏳️‍🌈🚫trumpsters!

Christina Sims

@sirsingsalot1
mukeshj27113517's profile picture.

mukesh joshi

@mukeshj27113517
MELIBELI77's profile picture. Mother to 3 beautiful children. I live day by day trying not to think about tomorrow because tomorrow is never promised to us.

MELISSA

@MELIBELI77
ClaybrooksCarla's profile picture.

Carla Claybrooks

@ClaybrooksCarla
Yetunde55592207's profile picture. smile heals me off when I smiles my nerves are happy with me #smileshealsmeoff

Yetunde toh cute

@Yetunde55592207
EUSTAR_org's profile picture. European Scleroderma Trials and Research group - aims to foster the awareness, understanding and research of scleroderma and its management throughout Europe

EUSTAR

@EUSTAR_org
Chantillies1's profile picture. Giving up is not an option. Just when you think I am on my way"out", I get my second.....or my trillion breath, and I am living for another day.

Chantillies

@Chantillies1
cperrine448's profile picture. I’m a fun-loving 30-something that is trying to live her best life while fighting multiple autoimmune diseases and chronic conditions. Wife. Mother. Friend.

Courtney Perrine

@cperrine448
HeheShana's profile picture.

Shana Hehe

@HeheShana
swagger372's profile picture.

Sarah

@swagger372
ATangelatam's profile picture. Scientist, research fellow interested in fibrosis, systemic sclerosis, immunology @UCLscleroderma | Early Careers Network Committee Co-Chair @domearlycareer

Angela Tam

@ATangelatam
SoniaFerreira74's profile picture. Writter and painting

🌻Sónia De Sá Ferreira 🌻

@SoniaFerreira74
6669NIKKI's profile picture. #JUSTICEFORSARA #SARAFAYELATIMER 8/10/1989~5/10/2022 BRUTALLY HONEST, LUV MUSIC, I HAVE SCLERODERMA, HAD A STEM CELL TRANSPLANT & I'M A SURVIVOR..SO FAR!

NIKKI (NOVICIC) LATIMER

@6669NIKKI
ConsejosReumato's profile picture. Alfredo Berrocal-Kasay MD, Reumatólogo/Rheumatologist, Lima-Perú

Consejos de Reumatología/Rheumatology advices

@ConsejosReumato
Sis_Que's profile picture.

Cindy Diaz

@Sis_Que
ScleroAus's profile picture. Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.

SclerodermaAustralia

@ScleroAus
Gurjeet35150054's profile picture. Guri

GurjeetSingh

@Gurjeet35150054
Sixstargirl's profile picture.

Six stars

@Sixstargirl
RaviKan36963115's profile picture. Save As humenbeing

Ravi Kant

@RaviKan36963115
OptimismSick's profile picture. Journey with #ChronicIllness #Scleroderma #SSc #TMA #AutoimmuneDisease #CKD on #TPE - sharing info, opinion & #optimism; hoping to help others along the way☺️

Sick With Optimism

@OptimismSick
claudia_sultan's profile picture. Author of A life with Uncertainty 📚 BSci Psychology 🎓 Scleroderma Survivor 🌻 Interstitial Lung Disease Warrior 🦋 Follow my journey

Living with Scleroderma - A Life with Uncertainty

@claudia_sultan
liljekonval2024's profile picture. Human searching for humanity 🙏🏻

Maj

@liljekonval2024
Worldsclerofnd's profile picture. The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.

World Scleroderma Foundation

@Worldsclerofnd
patriciareumato's profile picture. Médica reumatologista; mãe de 2 amores; casada de fato e com amor; apaixonada por viagens, culturas e livros; defensora do direito feminino de liberdade ❤️

[email protected]

@patriciareumato
besables's profile picture. Midwest thangs @KFFHealthNews. Funky diabetic. rt≠e, likes≠like, like like. Tips: brams@kff.org

Bram Sable-Smith

@besables
morethanmySLE's profile picture. ♿️ Patient Advocate-Cancer Survivor & Lupus Warrior; Testified 3x before Congress ; @AppropsDems/ @OversightDems/@EnergyCommerce

Peter Morley

@morethanmySLE
aniksingal's profile picture. Founder @ UgenticAI & ExpertScale | Investor in AI & Martech SaaS | Scaling Expert – Sold $100M+ Online | Showing how I use AI to build & scale businesses here!

Anik Singal

@aniksingal
JerrySeinfeld's profile picture. The Comedians In Cars Getting Coffee Book is available now!

Jerry Seinfeld

@JerrySeinfeld
CEOCorbus's profile picture. I'm the CEO of @CorbusPharma ($CRBP). I'm passionate about inflammatory/fibrotic/metabolic diseases and cancer. These opinions are my own.

Yuval Cohen

@CEOCorbus
tinaturner's profile picture. The Queen of Rock ‘n’ Roll.

Tina Turner

@tinaturner
EddinAlaa's profile picture. Scleroderma Warrior Spreading Scleroderma Awareness Sclero Coach PSS & PFA Trainer

Alaa Eddin

@EddinAlaa
miamaestro's profile picture.

Mia Maestro

@miamaestro
MoWheeler3's profile picture. I'm the mother of a way cool young woman, now wife n mother! couldn't be any more proud! Just stay home almost 365 n chill. Can't do much else with Scleroderma!

Mo Wheeler

@MoWheeler3
ladygaga's profile picture. MAYHEM, INCLUDING “THE DEAD DANCE”, OUT NOW

Lady Gaga

@ladygaga
GlobalGenes's profile picture. Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

Global Genes

@GlobalGenes
CorbusPharma's profile picture. Corbus (Nasdaq: $CRBP) is connecting innovation to purpose to improve the futures of cancer and obesity patients.

Corbus Pharma

@CorbusPharma
RunwayOfDreams1's profile picture. A non-profit organization that works toward a future of inclusion, acceptance and opportunity in the fashion industry for people with disabilities.

Runway of Dreams

@RunwayOfDreams1
OpenStyleLab's profile picture. We’re a non-profit that makes style accessible to people of all abilities. ♦️ Created: HackAbility ToolKit ♦️ Read our monthly research journals 👇

Open Style Lab

@OpenStyleLab
itsLOLOlove's profile picture. Disability is my Lifestyle♿️ Actress/Model/Advocate 👑Founder of Sitting Pretty Prod. 📺Jocelyn on @sexlivesonmax 🎬Indie Spirit Award Nominee

Lauren “Lolo” Spencer

@itsLOLOlove
gimpgirl's profile picture. Supporting the lives of women with disabilities. Meetings Sundays 1 PM PT at https://t.co/xasODgRXD4, and join us at https://t.co/dNeuXcdYeh.

gimpgirl

@gimpgirl
raynaudsorg's profile picture. The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.

Raynaud's Assn.

@raynaudsorg
ScleroIndia's profile picture. A Charitable Trust and Patient Support Group

Scleroderma India

@ScleroIndia
UvaDOM's profile picture. Twitter account for the University of Virginia Department of Medicine.

UVA Department of Medicine

@UvaDOM
uvahealthnews's profile picture. Research news, events and health tips from UVA Health.

UVA Health

@uvahealthnews
bobsaget's profile picture. I like long walks on the beach...and then to be dragged through the sand by an off-road vehicle, and then hurled off a catapult.

bob saget

@bobsaget
RareAdvocates's profile picture. A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!

RDLA

@RareAdvocates
SaketkooMD's profile picture. #BLM 💜always. Interstitial lung disease, fibrosis,pulmonary hypertension, scleroderma, sarcoidosis, RA-ILD, myositis, patient-centered research & interventions

Lesley Ann Saketkoo MD, MPH

@SaketkooMD
UVABME's profile picture. Here are all the good things that come from great research in the Department of Biomedical Engineering at the University of Virginia.

Virginia BME

@UVABME
UVAEngineers's profile picture. University of Virginia School of Engineering and Applied Science

UVA Engineering

@UVAEngineers
DysonHeppell's profile picture. #21 at @EssendonFC

Dyson Heppell

@DysonHeppell
AccessibilityLJ's profile picture. Accessibility Inclusion Consultant. President Scleroderma Victoria & Australia. Bilateral Amputee & person with Scleroderma. Views my own.

Amanda LJ

@AccessibilityLJ
mcgillu's profile picture. #McGill: 204 years of great education, excellent research, in service to society.

McGill University

@mcgillu
Boehringer's profile picture. Science for a healthier tomorrow. Medical innovation for people and animals. #LifeForward Community Guidelines: https://t.co/d5aGI1ZS8e

Boehringer Ingelheim

@Boehringer
IJasonAlexander's profile picture. Kindness, decency, humanity, empathy, curiosity and the desire to laugh just a little bit - let’s try for those and see if we make the world a little better

jason alexander

@IJasonAlexander
CreakyJoints's profile picture. Digital community for millions of arthritis patients and caregivers worldwide. Part of @GHLForg | support@ghlf.org

CreakyJoints.org

@CreakyJoints
DrJuanOvalles's profile picture. #RheumaTwitter 🐦 about #Sjögren's, #Scleroderma, 🤰 & Rheumthings | #SoMe Editor for @SEReumatologia | Living in Calderon de la Barca's Hometown 🇨🇴 🇩🇴

Juan Ovalles MD, PhD

@DrJuanOvalles
sclerodermaUM's profile picture. 👉University of Michigan Scleroderma Program leading the way through excellence in clinical care, teaching, & research #scleroderma tweets≠advice Follow≠endorse

Dr. Dinesh Khanna

@sclerodermaUM
AshimaMakol's profile picture. Rheumatologist, Assoc Professor & Vice Chair @MayoClinic Rochester #Scleroderma #Raynaud's #Capillaroscopy #MSKUS, Mom, Foodie, Traveller. Tweets are my own.

Ashima Makol MD

@AshimaMakol
DrJayMohan's profile picture. ❤️CardiologyOnCall 📚Educator #CardioX enthusiast🖐🏽posts= opinion/not medical advice. not affiliated with MHC. follow me on IG: @cardiologyoncall

Jay Mohan, D.O., FACC, FSCAI, FASE, RPVI

@DrJayMohan
SclerodermaPhil's profile picture. Scleroderma Philippines, a nonprofit patient organization which aims to promote patient education and raising public awareness of Scleroderma.

Scleroderma Phils

@SclerodermaPhil
EUSTAR_org's profile picture. European Scleroderma Trials and Research group - aims to foster the awareness, understanding and research of scleroderma and its management throughout Europe

EUSTAR

@EUSTAR_org
Worldsclerofnd's profile picture. The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.

World Scleroderma Foundation

@Worldsclerofnd
ACRheum's profile picture. Global medical society providing education, research, advocacy, and practice management support to over 10,500 rheumatology professionals since 1934.

American College of Rheumatology

@ACRheum
eular_org's profile picture. The European Alliance of Associations for Rheumatology. The registration for #EULAR2024 Congress is now open!

EULAR

@eular_org
scleroderma_vic's profile picture. Supporting the Scleroderma Community in Victoria

Scleroderma Victoria

@scleroderma_vic
skindeep217's profile picture. Patient Advocate,SPIN, Steffens Board Member, SYNC Creator,CoFounder of The Waiting Room Entertainment

SuperStarz38

@skindeep217
MeandSclero's profile picture. Dedicated to living my best life

Me & Sclero

@MeandSclero
scleroderma_sso's profile picture. We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease

Scleroderma Society of Ontario

@scleroderma_sso
SclerodermaRF's profile picture. Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT

SclerodermaRF

@SclerodermaRF
WeAreSRUK's profile picture. Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.

SRUK | Scleroderma & Raynaud's UK

@WeAreSRUK
SclerodermaTS's profile picture. We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. https://t.co/VclqavsAxC

National Scleroderma Foundation Tri-State

@SclerodermaTS
SclerodermaCO's profile picture. The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.

National Scleroderma Foundation Rocky Mt. Chapter

@SclerodermaCO
SclerodermaCAN's profile picture. Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.

Scleroderma Canada

@SclerodermaCAN
MBScleroderma's profile picture. Helping the scleroderma community in Manitoba connect through awareness, education, patient support and fundraising to support research. #youarenotalone

Scleroderma Manitoba

@MBScleroderma

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