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SclerodermaM's profile picture. Scleroderma research at the University of Manchester & Salford Royal Hospital. For nailfold capillaroscopy research from our group, check out @McrNCM

SclerodermaSalfordManchester

@SclerodermaM

Scleroderma research at the University of Manchester & Salford Royal Hospital. For nailfold capillaroscopy research from our group, check out @McrNCM

142المنشورات 201المتابعون 80المتابَعون
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
٢٨ أكتوبرم

Do you suffer with bowel accidents & scleroderma? Tell us how living with bowel accidents affects you & what support you received, to help future research! Complete the survey: bit.ly/4pTiEts @NCAresearchNHS @WeAreSRUK @alessia_alunno @delgaldoFrances @Worldsclerofnd

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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
٢١ أكتوبرم

🚨Patients with Systemic Sclerosis ('Scleroderma') survey alert🚨 Complete our anonymous questionnaire on faecal incontinence symptoms to influence the future of research here! bit.ly/4pTiEts @Worldsclerofnd @WeAreSRUK @delgaldoFrances @NCAresearchNHS @alessia_alunno

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cristianasieiro's profile picture.
Cristiana Sieiro Santos
 @cristianasieiro
١١ أكتوبرم

📢 Participate in the @Worldsclerofnd Very Early Diagnosis of Systemic Sclerosis (VEDOSS) Survey! Your insights will: ✔️ Identify key challenges ✔️ Highlight unmet needs ✔️ Shape future education & research 🔗 it.surveymonkey.com/r/8W59D8N

cristianasieiro's tweet image. 📢 Participate in the @Worldsclerofnd Very Early Diagnosis of Systemic Sclerosis (VEDOSS) Survey! Your insights will: ✔️ Identify key challenges ✔️ Highlight unmet needs ✔️ Shape future education & research 🔗 it.surveymonkey.com/r/8W59D8N
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scarlettrosep97's profile picture.
Scarlett Prentice
 @scarlettrosep97
١ أغسطسم

So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 2026tcslondonmarathon.enthuse.com/pf/scarlett-pr…

scarlettrosep97's tweet image. So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 2026tcslondonmarathon.enthuse.com/pf/scarlett-pr…
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
١٦ يوليوم

Excellent work from our group with help from colleagues in Leeds and Santiago, Chile

NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
١٦ يوليوم

Latest from our experts @ncalliance_nhs @sclerodermaM Thermographic abnormalities associate with electrocardiogram/echocardiographic changes and mortality in systemic sclerosis, suggesting a way forward in detecting cardiac involvement in Ssc academic.oup.com/rheumatology/a…

NCAresearchNHS's tweet card. AbstractObjectives. Cardiac involvement is common in SSc and is associated with high mortality, yet is challenging to detect. Our aim was to investigate re
Thermographic abnormalities associate with electrocardiogram/echocardiographic changes and mortal...
المصدر: academic.oup.com
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
٢٠ يونيوم

🚨Patients with systemic sclerosis survey alert 🚨 Questionnaire on ORAL HEALTH 👄 needs of people with systemic sclerosis (on behalf of the SCTC Orofacial in SSc Working Group) docs.google.com/forms/d/e/1FAI… @WeAreSRUK @Worldsclerofnd @EUSTAR_org @delgaldoFrances @alessia_alunno

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WeAreSRUK's profile picture.
SRUK | Scleroderma & Raynaud's UK
 @WeAreSRUK
١١ يونيوم

Our Head of Research, Ula is at @eular_org in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come. #EULAR2025 #SystemicSclerosis #Scleroderma

WeAreSRUK's tweet image. Our Head of Research, Ula is at @eular_org in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come. #EULAR2025 #SystemicSclerosis #Scleroderma
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
٢١ مارسم

Great to lead hybrid digital ulcer consensus meeting yesterday @OfficialUoM. Expert panel (including remote colleagues in Italy and Australia) discussing and assessing photographs to provide training data for machine learning/AI. @NCAresearchNHS

SclerodermaM's tweet image. Great to lead hybrid digital ulcer consensus meeting yesterday @OfficialUoM. Expert panel (including remote colleagues in Italy and Australia) discussing and assessing photographs to provide training data for machine learning/AI. @NCAresearchNHS
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
١٨ مارسم

SURVEY! Seeking clinicians perspectives on oral drug treatment for SSc Raynaud's. Important Discrete Choice Experiment on how clinicians choose treatment (Dr Michael Hughes and @sclerodermaUM). survey.1000minds.com/23338/wb9vpmp2… @WeAreSRUK @Worldsclerofnd @EUSTAR_org @alessia_alunno

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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
٢٦ فبرايرم

Just published in Microvascular Research: "Imaging the microvasculature using nailfold capillaroscopy in patients with Corona virus disease-2019; a cross-sectional study". Free access to our paper until April 17th 2025: authors.elsevier.com/c/1kgO85~Wz6eRV @NCAresearchNHS

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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
٢٦ فبرايرم

JOB ALERT! Our group is recruiting for a part-time (0.5FTE) research assistant to work on an exciting international study of digital ulcers in systemic sclerosis. jobs.manchester.ac.uk/Job/JobDetail?… @WeAreSRUK @VersusArthritis @Worldsclerofnd @EUSTAR_org @NCAresearchNHS

SclerodermaM's tweet card. Research Assistant in '100 DU’ Study:Manchester
Research Assistant in '100 DU’ Study:Manchester
المصدر: jobs.manchester.ac.uk
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
١٣ ينايرم

NEW SURVEY for patients with systemic sclerosis (scleroderma) on the role of environmental and occupational factors in SSc. soscisurvey.de/OccupationalSS… @WeAreSRUK @Worldsclerofnd @VersusArthritis @alessia_alunno @delgaldoFrances @eular_org @FarrSue01 @NCAresearchNHS @RheumatologyUK

SclerodermaM's tweet image. NEW SURVEY for patients with systemic sclerosis (scleroderma) on the role of environmental and occupational factors in SSc. soscisurvey.de/OccupationalSS… @WeAreSRUK @Worldsclerofnd @VersusArthritis @alessia_alunno @delgaldoFrances @eular_org @FarrSue01 @NCAresearchNHS @RheumatologyUK
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NCAresearchNHS's profile picture.
NCA Research NHS
 @NCAresearchNHS
٣٠ ديسمبرم

National survey explores rheumatologists’ awareness, approaches to diagnosis & management, & training needs within systemic sclerosis Dr Michael Hughes from @salfordco_nhs is the senior author on this @wearesruk survey academic.oup.com/rheumap/articl… @SclerodermaM

NCAresearchNHS's tweet card. AbstractObjectives. Patients’ outcomes and experiences can be affected by rheumatologist knowledge and awareness of systemic sclerosis (SSc). Our survey, d
A Scleroderma and Raynaud’s UK (SRUK) national survey to explore rheumatologists’ awareness,...
المصدر: academic.oup.com
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NCAresearchNHS's profile picture.
NCA Research NHS
 @NCAresearchNHS
٣٠ سبتمبر ٢٠٢٤ م

This study particularly needs females aged 52-59 currently - the research appointment @salfordco_nhs only takes an hour and could help to improve care for people with systemic sclerosis (we're looking for people without the condition)

Research_Future's profile picture. Research for the Future is an NHS-supported campaign helping people find out about and take part in health and care #research across north-west England.
Research for the Future
@Research_Future
١٨ يونيو ٢٠٢٤ م

🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss

Research_Future's tweet image. 🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss
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RheumatologyUK's profile picture.
BSR
 @RheumatologyUK
١٢ سبتمبر ٢٠٢٤ م

🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today! Key updates include interstitial lung disease, pulmonary hypertension, and more. Read more: bit.ly/3XnMSHO @WeAreSRUK

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NCAresearchNHS's profile picture.
NCA Research NHS
 @NCAresearchNHS
١٣ سبتمبر ٢٠٢٤ م

Great to see this work published - contributors include Drs Nuala O'Donoghue, Michael Hughes & Muditha Samaranayaka from @salfordco_nhs @SclerodermaM. Salford Royal is a referral centre for patients with #SystemicSclerosis & many of our patients have taken part in research.

RheumatologyUK's profile picture. The UK's leading specialist medical society for adult and paediatric #rheumatology and #msk health professionals. Note: we're unable to answer patient queries.
BSR
 @RheumatologyUK
١٢ سبتمبر ٢٠٢٤ م

🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today! Key updates include interstitial lung disease, pulmonary hypertension, and more. Read more: bit.ly/3XnMSHO @WeAreSRUK

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WeAreSRUK's profile picture.
SRUK | Scleroderma & Raynaud's UK
 @WeAreSRUK
١٢ سبتمبر ٢٠٢٤ م

Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. Sign up now! bit.ly/3TtaHg3

WeAreSRUK's tweet image. Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. Sign up now! bit.ly/3TtaHg3
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RGouldingUoM's profile picture.
Dr Rebecca Goulding
 @RGouldingUoM
٩ يوليو ٢٠٢٤ م

NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey

RGouldingUoM's tweet image. NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey
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WeAreSRUK's profile picture.
SRUK | Scleroderma & Raynaud's UK
 @WeAreSRUK
٢٩ يونيو ٢٠٢٤ م

Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care: Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🤝

WeAreSRUK's tweet image. Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care: Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🤝
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
١٥ مايو ٢٠٢٤ م

We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. @NCAresearchNHS @NCAlliance_NHS

SclerodermaM's tweet image. We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. @NCAresearchNHS @NCAlliance_NHS
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